We had a visit with Dr. Goens, Mason's cardiologist last week. She held clinic in Las Cruces and we were happy to not have to travel to Albuquerque for this visit. The nurse had plenty of help in taking care of Mason's vital signs as Matthew was eager to help out. Surprisingly, Mason's 02 sat was 88! That was on .5 litre of 02, but was remarkable nonetheless. Dr. Goens felt it was time we allowed Mason to come off the continuous 02 and hold his own. We will continue to monitor his 02 levels and make sure he is maintaining them while at home. The oxygen tanks/concentrator will remain in case there is a need. Dr. Goens also discontinued one of his doses of Lasix and discontinued his Captopril and replaced it with Enapril, 2 times per day. Happily, we are making progress!
Now that he doesn't have the 02 cannula and cheek stickies, he looks darn good. His weight was 18 pounds and is therefore another reason to celebrate. We can discontinue the nightly g-tube feedings and see if he continues to gain weight properly. He is currently somewhere in between the 10th and 25th percentile for weight, which we will be glad to maintain. If you didn't know all about him you would never know what he has experienced. God has truly blessed us and we can see it in Mason each and every day.