Baby T's Journey

Hope for children with Hypoplastic Left Heart Syndrome
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This is all about me...

Diagnosed in utero at 20 weeks with HLHS. On August 1, 2008, after some false contractions and a big scare, Mommy & Daddy traveled to Lucille Packard Children's Hospital at Stanford University to give birth and give me a chance at life. I wasn't born until August 19, one day from my due date. I successfully underwent the Norwood on August 22nd and was known as the "Golden Child" for my cardiac recovery. Unfortunately, I developed a pleural effusion which kept me in the hospital longer. Due to my left vocal cord paralysis and reflux, I had a G-tube placement on September 24th. I was finally transferred to UNM Children's Hospital on October 1. I left there on October 15th to go home for the first time.

I returned to LPCH on December 4th and underwent my heart cath on December 9th, and was given the the ok for the Glenn. I went in for the Glenn on December 11th and they nicked my aorta upon opening my chest, which led to it rupturing. I was saved, closed up and the Glenn aborted. We waited seven days to make sure my MRI was okay and I went back in on December 17th for the Glenn. My only ventricle was considered severely dysfunctional afterwards, but nontheless on December 31st I was well enough to return home. On July 18, 2012 my Fontan was completed at LPCH and another pleural effusion kept me in the hospital a long while. On August 9, 2012 I was discharged and made my way back home. So here I am, hanging in there and Mommy thought it would be a great idea to share my life with all of you. I have to agree with her-I'm awake, I'm alive, and I'm glad I survived!

Baby T's Journey

Monday, March 2, 2009

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