I am scheduled for an induction at 10:30am. Dr. Cheuh asked me to call the hospital around 8:30 to see if this is still possible. They have to make sure there is a room available for us. With so many babies being born here, there is a chance all the labor & delivery rooms may be occupied! I took a look at one of the rooms while on my tour last week and they were great. They even have a spouse couch.
In the past few days I have met several more people with children that have had the first operation for HLHS, have just had a heart transplant, have had an unsuccessful transplant and are awaiting a new one, waiting for a new liver, received a new liver, have had a heart and both lung transplant, have a baby with pulmunary artresia and has had one surgery, received a new heart and is almost in the 100 day waiting period before going home and someone that has a baby going home after their second surgery for HLHS. It is so amazing to hear of all these courageous stories. There is absolutely no doubt that we are not going through all this alone.
We have spent some late nights talking about our children, families and life back home. I have even met one couple, Denise and Eric, who are from Pecos, New Mexico. They have the infant with pulmonary artresia and Turner's Syndrome. Her first surgery was not a complete success and she as a leaking mitral valve. Denise will have to leave back to New Mexico tomorrow to return to her job; her husband will being staying and trying to find a job here. Once he does, they will relocate to Palo Alto.
Mr. & Mrs. John Crane gave us a beautiful Christening outfit. It includes cap and booties that were all hand crocheted. It has to be one of the most beautiful things we have seen. We appreciate this so much. We have scheduled for the baby to be baptized shortly after birth. If all goes well, we will have our beautiful baby boy join us outside the womb tomorrow.
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