So our little trek to Las Cruces for Mason's echo on January 14th didn't really lead to much info at least not how I see it. We were about 20 minutes late to our appointment and the echo tech had a limited amount of time to work with Mason. Mason didn't seem to care that things were time constrained as he didn't want to be there to begin with. As soon as the tech/nurse began trying to do his echo he started crying and promptly threw up on her. He wanted no part of her touching his chest. I attribute this to the fact that he has been getting his monthly Synagis shots, one in each leg/muscular, and he is now acting out against all nurses. So after she got cleaned up, we tried to have him sit still and finish up but we weren't the star pupil for the day.
As a result of his fitfullness they didn't get exactly the best view of his heart but from what Dr. Goens could tell things looked pretty good. His function was good, his aortic arch was open/not constricted but she did see that his right ventricle is moderely hypertrophied. This means there is some thickening of the right ventricle. As explained to us, this might just be to the fact that when the Norwood was done and subsequently the Glenn his heart has changed in size. The Norwood requires the ventricle to enlarge more/do more work and the Glenn less. I can't really explain it but it makes sense to me. From what Dr. Hanley told us before about the heart remodeling, this sounds like what it could be. The tricuspid regurgitation was increased but was also attributed to his crying. As for his weight, he is 28 pounds which is wonderful as this places him in the 50th percentile. He was previously in the 25th percentile so he has made enormous progress without the g tube. We will continue to be off the digoxin and will have another echo in April to determine if this is still the best course of action.
Mason at his Mountain View Hospital, cardiology clinic.A few days later Mason must have recalled his experience as he used the sat monitor to give himself and echo! I think next time we will just ask the nurse for the probe and let him go at it himself. Just gotta love it all!!!
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